Epilepsy foundation new england

The Epilepsy Foundation New England (EFNE) is a non-profit organization that provides education, support, and advocacy for individuals with epilepsy and their families in the six New England states: Maine, New Hampshire, Vermont, Massachusetts, Rhode Island, and Connecticut.

Here are some of the services and programs offered by EFNE:

1. Education and Awareness: EFNE provides educational materials, workshops, and online resources to help individuals with epilepsy and their families understand the condition, manage seizures, and navigate the healthcare system.
2. Support Groups: EFNE offers support groups for individuals with epilepsy, caregivers, and families, providing a safe and confidential space to share experiences, receive emotional support, and connect with others who understand the challenges of living with epilepsy.
3. Advocacy: EFNE advocates for policies and legislation that benefit individuals with epilepsy, such as access to affordable healthcare, seizure response training, and increased funding for epilepsy research.
4. Seizure Response Training: EFNE offers seizure response training for individuals, families, and caregivers, teaching them how to recognize and respond to seizures, including how to use an Automated External Defibrillator (AED).
5. Research: EFNE supports research into the causes, diagnosis, and treatment of epilepsy, with a focus on improving seizure control, reducing the risk of sudden unexpected death in epilepsy (SUDEP), and developing new treatments.
6. Community Outreach: EFNE reaches out to communities across New England, providing educational programs, workshops, and events to raise awareness about epilepsy and promote understanding and acceptance.
7. Online Resources: EFNE offers a range of online resources, including a website, social media channels, and online support groups, to provide information, support, and connection to individuals with epilepsy and their families.

Some of the specific programs and services offered by EFNE include:

• Epilepsy 101: A free online course providing an introduction to epilepsy, including its causes, symptoms, diagnosis, and treatment options.
• Seizure Response Training: A comprehensive training program teaching individuals how to recognize and respond to seizures, including how to use an AED.
• Caregiver Support: A program providing emotional support, education, and resources to caregivers of individuals with epilepsy.
• Youth Programs: Programs and services specifically designed for children and adolescents with epilepsy, including camps, support groups, and educational resources.

To learn more about the Epilepsy Foundation New England and its services, you can visit their website at www.efne.org or contact them directly at (617) 969-6600.